MRI also fine

Posted in Arieanna & Ianiv

I’ve been the subject of many medical tests in the last year to hopefully identify the cause behind why the nerve in my arm is sending pain messages to my head. So far, no luck.

Yesterday I got the results of the latest test, which they were hoping would confirm one theory as to the cause. Nope, healthy. I’m actually very very healthy, aside from the fact that I take about 10 pain pills every day ;)

Anyway, thus far I’ve hat a CT Scan, MRI, EMG, SSEP, Ultrasound, bloodwork, 2 Xrays and I cannot remember what else. It’s been a year, or just over, since it started. What a year!

So the result as of right now is that I am healthy and they have no idea what the cause of the pain is. The last and only hypothesis they have remaining is that my nervous system is misfiring and they don’t know enough about how to fix that, or even diagnose it. If there is another cause, they’ve yet to find it.

They’re referring me to yet another specialist (I’ve seen more than half a dozen already), this time a vascular surgeon. I suppose they are considering operating just to see if they can identify or fix something in the shoulder region. No idea yet.

While physiotherapy made some improvement, it did lead me to suspect that something musculatory was part of the problem. However, so far they have not mentioned anything muscular to me, nor have they suggested treating the region of tense muscles that surround my shoulder and neck. Truth be told, the only ones really feeling around in that area are physiotherapists – for the most part, doctors have not been “hands on” with their exams, except as it pertains to my arm.

Yes, Canada has free health care. And, thank goodness, since I’m costing our country a fortune. That being said, it makes the treatment and identification of my medical mystery quite laborious. The waiting lists are horrible, and it takes weeks to get results. The system seems to work on a very linear basis – you see one specialist at a time, get the test, get the results, then move on. You don’t sign up for all the tests at once, which would have been way faster and better. And the specialists, for the most part, don’t really talk to each other to share ideas. One specialist actually told me he didn’t have any more ideas and to basically go away. Nice treatment, hey?

So, I’ll keep updating as I have news. I am told the waiting list for the vascular surgeon is quite long, so don’t expect anything soon.

5 Responses to “MRI also fine”

  1. Barbara says:

    Hi Arieanna,
    I’m sure you’ve been asked this before but what alternative therapies have you tried for your shoulder? As you have seen for yourself, physio appears to be the only thing helping. This tells me that you may do well to look seriously into other alternative healing touch therapies. I am an avid user of acupuncture for any and all ailments, and have been cured of two serious life altering conditions. Your referred pain symptoms tell me you are a great fit for acupuncture as well. I am local in Vancouver (attended both parts of your terrific IIMA blogging workshop last week!) and have several good recommendations if you are interested. Also, if you have extended healthcare, part or all of the cost should be covered.

  2. Arieanna says:

    Thanks! I did accupuncture for about 6 months along with my physio. Right now I’m not on extended health, as we’re still early in our own business, but do plan to pick up some extra coverage in the new year. I think I can get a hospital referral to get physio covered 100% for my “type” of chronic pain. But thanks! I should head back to accupuncture once I’m set with health care.

  3. Victor says:

    Did you have any other problems (pain elsewhere) before the headache started?

  4. Victor: it’s the arm that hurts, not the head

  5. Victor says:

    If any doctor orders a “Myelogram”, don’t do it.

    Since 2000, I had a terrible pain in my leg. I got an MRI that showed a “minor” problem in the disc between the L5 and S1. One doctor ordered a Myelogram. Since then, I had a terrible headache. Later I found many other people had the same problem.

    I changed doctors, then I had surgery in 2002. My pain in the leg is gone. My headache went down from level 9 to level 1. However, it is there all the time: I wake up and go to bed with a very mild headache.

    Have you seen a neurosurgeon.



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